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... and welcome to the chaos. I know a thing or two about big families (I've got 6 kids), carpool, Catholic converts, the Texas Aggies, prematurity, date nights with Mr. Whitaker, organization and party planning, but I still don't know why it's so hard for my kids to put up their shoes. My Texas-sized heart is honored to have you here! Contact me at kathrynwhitakertx@gmail.com
Came to your site from the Johnsons, we had two preemie’s – twins at 31 and 32 weeks gestation, we lost Royce at 3 days but are happy to say Jamie is now 34 years old and dad to his own special preemie, Opal who came out weighing 1 lb 15 oz 13 1/2″ long…hope you don’t mind me reading along.
[…] way to keep family and a few friends in the loop about life at our house. When I gave birth to our preemie two years ago, the blog took on a whole new meaning. It certainly kept our friends and family […]
[…] The Preemie […]
Read along anytime, Ali! Thank you for sharing a little of your story, too.
Just stumbled onto your blog via the Top Ten: How to survive the NICU. Which was a GREAT post and I related to it in SO many ways. .. I haven’t been able to stop reading your blog.
I am a preemie mom to twin boys who were born at 29w. Twin A’s membranes ruptured at 18w and I was on bedrest until delivery. He ended up spending 100 days in the NICU and he also had NEC.
Thanks for writing such a great blog. LOVE it and it is now marked in my fav’s!
Welcome to the blog, Sara! Thank you for sharing your story.
I am the mother of a prmieee as well.My son was born at 28 weeks weighed 2lbs. He is almost 12 now and you can’t tell that he was a prmieee but our struggle to get there is a lot longer than it took him to grow up!I look forward to reading more about littlebit!
Hi Kathryn,
My friend Maria sent me a link to your Lent blog for this year and I have so enjoyed reading your posts. LOVE the 40 bags idea. It is the perfect missing piece to our Lenten “plan” this year! 🙂 Anyway, we have much in common! I am a momma to 6 kids, ages 10 to 9 months, 5 of whom were preemies (three 36 weekers, one 35 and one 28). I feel ya on the never ending stream of appts and specialists! But I thank God too every day for the amazing blessings… My heart was touched reading about your sweet Luke. Thanks for sharing and for your beautiful witness. If you ever venture back to Carmel I would love to meet you!
God bless,
Alli
We are trying to figure out when to head back to Indy. 7 of the 10 God parents live there, so they are itching to see my kids! Welcome to the blog. We do have a lot in common!
I’ve noticed your blog is fairly public, so I passed along your entries on Luke’s feeding issues to a fellow Mom friend and Catholic whose daughter is having major eating issues. They’ve pulled her feeding tube, but things aren’t progressing and she is likely headed for a semi-permanent one. I thought it might help somehow for her to know she isn’t alone in her struggle and frustrations as a Mom facing such a daunting problem. We hope Luke is doing well right now!
Pass it along anytime. We just take it one day at a time over here. It’s the only way to roll.
[…] Fast forward to baby number five, our preemie. […]
Hi, I came across your blog after reading about your closet organization on Iheartorganizing. I have a daughter who spent her first month in not one, but two different NICU’s (the hospital where she was born and the local Children’s Hospital here in Atlanta). She had endured several stays after her initial discharge and 2 surgeries (having a g-tube put in and open-heart surgery to repair her VSD). My Riley is now almost 22 months, and while she will most likely have issues her whole life, if kicking butt and taking names Thank you so much for sharing your story about Luke. As awful as it is for anyone to have a baby in the NICU it’s nice not to feel alone.
Michele, as did we! We began in one and then were emergency transported to our local children’s hospital. We flirted with g-tube surgery for nearly a year. And, our son has a PDA and a VSD (currently unrepaired). It sounds like we have much in common! Luke will have challenges indefinitely, but his demeanor can’t help but melt your heart. He is tough – often times, tougher than his momma. I recently helped launch an awesome preemie blog, http://PreemieBabies101.com. Stop by and hopefully you can connect with even more moms who share your struggles and joys. It’s a real honor to have you here!
Breastfeeding a premature baby after a csicoetn. Any tips?Due to complications with my pregnancy I have to have a csicoetn at around 34 weeks. My last baby was also born at around 34 weeks and I never managed to successfully breastfeed her due to a lack of support in the hospital but I would really like to give it a go this time round, despite the fact that I will also be recovering from the csicoetn. So, was just wondering if there is anyone out there who has been through a similar situation and can offer any tips/advice? I am 30 weeks now and go into hospital for a month on tues before my scheduled csicoetn.
I found your blog today after seeing your post on iheartorganizing. (love your closet organization, by the way!) When I saw your preemie tab at the top of your page, I had to read it. We had our son at 34 weeks in September of 2011. (09/10/11!!) I started hemorrhaging at work and was taken out in an ambulance. I was so scared that I had lost him. I don’t think I will ever forget the sound of his heartbeat when they found it with that machine! The nurses and I just cried and I thanked God over and over. He is now almost 11 months old and I thank God everyday and am amazed at how blessed we are. I am excited to have found your blog and look forward to reading your posts! Your family is amazing and so strong for all that you have been through! Having a preemie is such a scary thing and it sounds like your family has really had a lot of stressful times, but your son is definitely a fighter!!
Carrie, thank you for your kind words. What a miracle that your son is alive and doing so well. Thanks be to God! I look forward to having you over here, thanks be to the Internet 🙂
I actually found your blog while researching a way to Organize my six year old daughters closet. I am a mom to preemie as well. Estella was a surprise gift from God. I was diagnosed with leukemia at 24 weeks into my pregnancy with her. I had to begin chemotherapy immediately. Estella was delivered at 29 weeks and weighed two lbs two ounces. She was healthy but tiny at 14 1/2 inches long. She spent 57 days in the NICU at UCSF here in California. We have been blessed that she is healthy and happy and is now an avid reader and excels at swimming and gymnastics. You and your family are in my heart and prayers! I look forward to following more of your journey.
I love it when people connect here – and you serve as wonderful inspiration to “life after the NICU.” Thank you so much for sharing Estella’s story. She sounds like a great little girl. I’m happy to have you here!
What a presicous story. My youngest Grace now 17 was born at 30 weeks and deaf. She spent 14 weeks in the NICu, had 2 operations in the NICU (an ear operation and an operation to correct her bladder) and 6 more after( bone correction surgery at 1 year, another bladder surgery at 3, eye surgery at 5, bone surgery at 10, YET another bladder surgery at 12, and an eye surgey at 15) , 17 years now of speech therapy, PT for a total of 4 years(1-3 and 10), OT for 8(2-10) and vision for 12(5- now). I homeschool her(12th grade) and homeschooled her sisters now 20, 22 and 25.
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Hi. I was sent your blog about a post that you made this week and like many others above I saw the link for Prematurity and I clicked on it. I had twins at 27 wks, 6 days. I had gone in to labor at 21 wks, 4 days, stablized and then went in to labor two more times and it was stopped. The last time they could not stop it and I delivered them. Baby A was born natural birth and as a result had a brain bleed which was not caught on any of the MRI’s until he was being evaluated for discharge at 74 days. He has a cyst in his brain that is the size of a golf ball & enlarged ventricles in both halves of the brain. Here is the encouraging part. He will be 17 years old next month and a junior in high school. He is an A/B student taking AP classes. He does have an anxiety disorder and wears glasses..but that is it. His twin was born C-Section and had gone in to fetal distress because the placenta abrupted (so I hemorraged because I lost half my blood volume and was very quickly going in to massive organ failure). He had to have a blood transfusion at 2 hours old. He also had to have double hernia surgery in NICU. He also has to wear glasses and has ADHD. He is an average student and almost an Eagle Scout. he spent 93 days in NICU You will always have that fear about them. Just reading your story flashed me back almost 17 years like it was yesterday.
Miracles – all three of you! What an amazing story. I’m honored you shared it with me and my readers. Thank you!
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