Today should really be called “the day of miracles.”
We woke up (HAHA) and were so happy to see a few glimpses of the Luke we know and love. There were some small smiles, some mild flirting with the nurses and a much happier kid.
I kept debating whether to jump in the shower or not. What happens 99.99999999% of the time is I do get in the shower and then the doctor arrives. Fortunately, the 0.000000001% was on my side this morning. Just as I turned toward the shower, I heard Scott laughing and he pointed to the door.
In walked Dr. C. He wrote the order for us to pull the foley, transition to oral pain meds and get Luke up and moving. Nobody seemed to be as concerned as me about the bowel. Perhaps I’m slightly OCD when it comes to that aspect of Luke, but if you’d been through the third ring of hell with a dose of Longhorn, you’d be leery, too.
Around 11am, we got Luke out of bed and he stood for about a minute on his own. Woo to the hoo. We found a pint-sized wheelchair and took a field trip down to the library to checkout some DVDs. On the way, we stopped to admire the awesome atrium and landscaping here at Dell. It may be the place I love to hate, but boy is it a beautiful building. The company my dad works for was the general contractor. And, since I do work for them as a freelance consultant, I know more about the infrastructure of Dell than most. It is such a healing place.
But I hope we never darken the doors of this place ever again.
Luke did beautifully. He made some funny comments and really became animated when picking out his movies in the library. After arriving back in our room, he ate a chicken tender and a bowl full of ‘mashed tatoes’. His absolute favorite food of all time. He would’ve eaten them for breakfast if we let him. We enjoyed lunch and conversation with a friend (thanks Kraft!).
Still no wet diaper, but we loaded Luke up with antibiotics, fluids and pain meds and hoped for the best. Amazingly, we all enjoyed a two-hour nap with no interruptions. That never happens, especially at Dell. So, for that awesome person that prayed for a good nap today, you are now my BFF.
Even though we have an army of specialists who watch after Luke, the beauty of that is that we’ve met some pretty awesome medical staff. One of our favorite NPs of all time, Morgana, stopped in for a social visit and some laughs. It’s in those moments that I am thankful for people who not only love their jobs, but are using their gifts to heal my sweet Luke.
Scott ran to the office to pick up a few things while Luke and I went hospital exploring again. This time around, he was way more animated, cracking jokes and pointing to everything in the hospital. But, to the sweet five-year-old he scared on the elevator, my apologies. His poor bald head and knarly scar had her running off the elevator like a rat from water. Luke just laughed and said, “I scared that girl.”
Scott met us in the playroom and we finally got brave enough to let Luke stand on his own two feet and play with some cars. My gracious that kid has zero fear. Scott and I looked like first-time parents chasing him around the playroom. Slow it down, dude! He made the 30-foot walk back to the room (amazing) and ate a pretty hearty dinner for his standards. We were blessed with some awesome BBQ (thanks Francine!) and even better company.
With every friend who drops by or sends a sweet message I am in awe of this awesome community – through both faith and friendship – we share. Every family should feel this support. For those of you that help a friend in need and wonder if it’s enough, I’m telling you that it is. All those moments of small love add up to something pretty beautiful.
After fist bumping and batting eyelashes with the nurses and clinical staff, we said goodbye to our day staff and broke in the night nurses. Luke has watched more movies and eaten more cookies than usual. But, hey, he had brain surgery. He’s allowed. Around 10:30, Scott walked in and saw Luke munching on a popsicle watching a movie, “Well, aren’t you living the life,” he said. “Yep!” was the reply. This kid.
Here’s hoping for a stinky diaper, an even better appetite, more walking and a few less tubes for tomorrow!