All the information is in, biopsy results are back and the verdict is here.
There is no known medical reason for Luke’s crummy eating. Awesome. That was a mighty expensive “we don’t know what it is” test. But because the kids pulled out “fast from saying anything negative” from the PFA Basket this morning, I am reminding myself to be thankful.
I’m thankful his gut, and all associated with it, is normal, healthy and totally functioning. That is BIG news for a kid who had NEC.
I’m thankful the answer is more therapy. One, because we love his therapist and two, his eating woes are 100% treatable. It’s just going to take a boatload of time.
I’m thankful we don’t have to darken the doors of Dell for several months. I hate that place. Oops, that was negative wasn’t it? Um, I don’t care for how it feels to “be” at Dell. There, is that better?
I’m thankful we don’t have a soccer or baseball practice, a math class, a late night meeting or anything else on the calendar tonight. Momma needed a night at home with no crazy after-school “stuff.”
The above photo is our skinny, but completely happy, Luke. He’s still at 20 lbs. as a 2-1/2 year-old. I guess tackle football is out. We have some big doctor visits coming down the pike: cardiology, developmental pediatrician/neurologist and ENT. After a phone consult with his gastroenterologist, we’ve decided to keep plugging along with the OT. And, should he have a bad week of throwing up and diapers, we’ll do a 5-day stint of flagyl. It’s basically an antiobiotic that “resets” the bowel and clears out any nasty bacteria hanging out. I’m busy doing research to find out what more we can do, but that’s the plan for now.
I pray your Lent is going well. So far, about 36 hours in, we’re keeping up our promises. Just 38-1/2 days to go…