First off, mighty big Texas THANKS to each and every one of you awesome people. Luke’s procedure on Friday went beautifully and I have you and a pretty amazing God to thank for that.
The feeding journey with Luke is still making its way through the forest, but I catch glimpses of sun rays every now and then. It almost makes me giddy. We’ve been toying with the idea of endoscopy for almost a year. Back in November 2010 (man, has it really been that long?) when Luke first started the liquid supplement, Boost Kid Essentials 1.5, I never dreamed it would STILL be his main source of nutrition over a year later. That stuff ain’t cheap. But, it keeps him alive and for that, I am 100% thankful.
Last June, I almost bottomed out with hope. I mean, when your kid is throwing up three times a day, one tends to wallow in self pity and hopelessness. My knees were practically raw with all the knee time God and I spent together.
We’ve talked about GI tubes, swallow studies, antibiotic regimens, probiotics, diet food elimination and even a six-week, in-patient feeding hospital stay in Dallas. It’s at this point I’m going to give props to our patient, kind, knowledgeable, wonderful GI doc, Dr. B and our OT and ST, Laurie and Tasi. They have given me my sanity when I desperately needed it.
Back to Friday. I must say, of all the procedures Luke has had done and of all the stays and trips we’ve made to Dell Children’s, this one did not freak me out. Progress? Luke and I awoke at the crack ‘o dawn and jetted down to Dell. As in 0545. People should not be awake, showered, dressed and ready at that time of day.
We arrived at pre-op and checked in, did the necessary paperwork with the accounting people. My answers were YES, NO, NO and NOT TODAY.
YES, this is my child and here are my forms of ID.
NO, he is not sick or running a fever.
NO, I do not need all the instructions you’re giving me, this ain’t our first rodeo.
No, I will NOT be paying TODAY our balance in full. Haven’t you seen our EIGHTEEN accounts with you people??
The nurse called us back and I’m thankful I did not have to run through Luke’s history. It’s a good thing, because that would’ve warranted a 4:45 arrival. Anesthesia popped in, as did Dr. B and our surgery nurse. All quite lovely people. Our anesthesiologist even remembered us from a previous gig. I’m going to go with “that’s a good thing.” All was well until I changed Luke’s clothes and handed him to our surgery nurse, Mel. He gave me the “the look.” Like, “Mom, you are NOT giving me to a strange person and walking away, are you?” He let out a little whimper and then arched his back and let ‘er rip. He was ticked. They quickly rushed out of the room, and I turned around and let those eyes fill up with the all-too-familiar tears.
It never gets easy. Ever.
After nearly a minute of hearing him scream, I couldn’t take it anymore. I headed out the door for the nurse’s station. Guess who met me there? The surgical team. They decided to break the rules and let me carry him back to surgery. Fortunately, this wasn’t a sterile procedure, so I was able to sit on the gurney, hold his sweet little body while they put him to sleep. It was quite the scene. Dr. Park our anes, cued “Up!” on his iPhone, Dr. B held the phone, Mel was holding the mask over his face and the nurse anesthetist was watching his vitals. In less than a minute, he was out and I headed to wait.
When I pulled up my phone I saw half a dozen texts and I knew – WITHOUT A DOUBT – your prayers allowed that to happen.
Thank you for easing a mom’s pain and a little boy’s fears. The procedure went wonderfully and I had a great, long visit with his gastro. We have a semi-plan in place and are awaiting biopsy results this week to firm it all up.
The biggest news is that Luke does not have reflux. We are relieved and thankful. More than that, actually. Now we take the next step and work on figuring things out.
Someday we’re going to eat a burger at Mighty Fine and I am going to be crying like a baby. I just know it.