On July 18, Luke officially marked ten months…and he is making amazing progress. We’ve had a flurry of doctor visits, orthotist appointments and therapy sessions so I thought I’d give you a whole lotta updatin’.
We were a wee bit late on his 9-month well check. We just made it back in and ‘itty-bitty’ Lukey now weighs over 14 pounds! We still have a ways to go to get to the 20-pound mark, but all of us will be super happy to see him hit 16 pounds at a year. Here’s hoping.
Developmentally, he’s finally headed on an upward trend. Praise Jesus.
Eating like a champ.
Sleeping – eh, notsomuch. It’s like a Picaso painting. It’s a work in progress.
PLAGIO / ORTHOTIST
We moved from weekly visits at the orthotist to every two weeks. His head already looks a little better. We are incredibly thankful that we were able to get him in the helmet. Master Luke was the talk of the clinic last week with his tricked out helmet. Hopefully, we can get a shop here in Austin to start doing it.
GI (Belly Doctor)
First with the good news – she’s happy with Luke’s progress and doesn’t think he needs to go back on any antibiotics unless he has really worrisome symptoms, like distended belly, extreme irritability or feeding intolerance. And, for the really, really good news – we got a four month pass before we come back again!
NEPHROLOGY (Kidney Doctor)
Dr. Simon repeated Luke’s ultrasound and it shows growth in his right kidney, but no growth in his left one. He said he doesn’t put all his stock in the accuracy of that test because the sonographer could’ve been off a millimeter on either side and that would account for the discrepancy. He’s more focused on Luke’s growth, developmental milestones and color. All of which he passed with flying colors. In medical-speak, clinically he looks great. His creatnine levels are at .3, right where they should be. We go back in January and reassess his progress. At some point, if that left kidney doesn’t start showing growth, then we’ll talk about our options. But we’re not there yet. In Dr. Simon’s words to Luke, “Dude, you look good.” Those words meant even more when Dr. S elaborated and said that it’s a miracle that Luke’s alive after his last hospital stay in April. That blood reaction he had to the cephalosporins quite nearly shut down his kidneys. In Dr. S’s opinion, it’s a miracle it didn’t.
Boy, this kid is just full of those, isn’t he?
Luke makes great progress between his every two week visits. We are mildly concerned about his feet, one is more pronated (turned in) than the other. Once he starts putting more weight on them and pulling himself to stand, we’ll take a closer look at that. For now, though, he hit a huge milestone…HE CAN ROLL BOTH WAYS!! For reals people. That is HUGE! When we put him in the crib for naps and bedtime, he’s never in the same spot when we come back. Our next big milestone is crawling.
One baby step at a time.
In August and September, we visit his neurosurgeon and cardiologist. Those are biggies. We’re still watching the hole in his heart and the large fontanelle on his head to see if they’ll close. My money is on Luke. We’ll see if the doctors agree. For now, it’s a watch and wait game until age 2, then we talk surgery. *sigh*
With every specialist visit I am reminded that Luke’s progress, his precious life, is a complete and total miracle. All kids are, really. But, in Luke I am reminded of it constantly. I am also reminded that life is fragile and to be cherished always. Thank you, God, for giving us this gift.