At 2am, the nurse woke up Luke to do an irrigation (basically, we stick a tube up his hiney, shoot in some saline, and then let it drain). Lovely, I know. It’s an effort to help decompress his belly and to stimulate his body to poop spontaneously.
That’s about the moment that I got really frustrated. I’m pretty sure I spouted off a litany of things I was frustrated about to Scott, then I cried, then I ranted some more, then I pumped. Pretty much how things go the night before things start to turn around. It’s too complicated to get into why I was frustrated, but it was therapeutic to get it out and Scott patiently listened. After we got a few hours of sleep and I drank some Starbucks, I had a more rational outlook. Sleep deprivation is not a good thing. It makes you speak crazy talk.
Both Dr. Josephs and Dr. Meyer (pediatric surgeons) stopped in and were pleased with Luke’s progress. We pulled out the NG tube – Luke was estatic to see it go – and we’re continuing with the decompressions for the remainder of the day. We had some special visitors – Fr. Danny, Fr. Dean (the Godfatha), Fr. Richard and Fr. Dave (straight in from the Big Apple!) – that brought such sweet blessings to Luke. We even offered up a prayer to St. Bonaventure, the patron saint of bowel movements. Who knew? Thanks to Scott’s co-worker, Bob, who brought us lunch and a few laughs.
Dr. George stopped in briefly and was happy to see Luke kicking his legs, playing with toys. He gave us the all clear to pick him up and move him as much as we wanted. Yippee!! And, we also had consults from hematology and gastroenterology. Told you Luke was a social butterfly. Gastro wanted to see a diaper and then felt comfortable letting Luke eat. Around 3, Luke gave us our wish and loaded not one, but two diapers. We’ve never been happier about the “p” word.
Hematology’s consult was a bit more involved. Dr. Shaeffer asked me a million questions about Luke’s history, his challenges with blood level drops and what medications he had taken. She had a hunch she knew what was going on but wanted to spend more time with his chart, reading and dissecting his history. I told her she might want to grab an entire bottle of wine…
The best news of the day came around 4pm when we got the all clear to start feeds!! Luke wasn’t too thrilled about having to take them via bottle. The doctor needed to measure his intake which is impossible to do with direct breastfeeding. After a few tries over a couple of hours, we finally got him to take milk via the bottle. Quite honestly, I was starting to sweat it. He’s funny because the last couple of hospital stays he will only take a bottle and paci at Dell. But, once we get home, he wants nothing to do with either. It must be a psychological thing… Either that, or he just goes for the good stuff and isn’t fooled by imitations 🙂
Scott headed home to be with the kids and his mom and enjoy a night at the Round Rock Express game with my parents. It was company night in the box, so the kids were in heaven eating their body weight in sugar and watching fireworks. Luke and I just chilled at the hospital, wishing we were with the rest of the gang.
After eating a quick bite, I had a friend who came up to the hospital to hold sweet Luke while I took a quick shower. Or, as the nurse said, “Oh, you’re going to get some ‘me’ time.” I’d hardly call showering, in a community shower, in the Dell PICU “me” time, but at least I smelled better! Dina, thank you for showering Luke with some much-needed love.
I had the opportunity to visit with the intensivist about Luke’s progress. Quite honestly, I think everyone was being super-duper cautious – nobody wanted to be the doctor that made Luke have a setback. Around 11, Luke settled in for the night…I plan on doing the same.
And that, my friends, is a wrap on day 3.