I think today was the first day that I spent most of my waking hours with the other four kids. It was nice and weird and sad and surreal, all at the same time.
I spent a few hours with Luke this morning. We had a “diaper scare” at 3:30am. It wasn’t bright red blood, but still cause for concern. We kept his feedings the same instead of increasing them, ordered some x-rays, put a tube down his nose to rid his belly of some air pockets and will – you knew I’d say it – watch and wait. Can I just tell you right now how much I’m really coming to hate those two words? I’ll be at the hospital bright and early in the morning and we’ll visit more in-depth with the neo.
As I was visiting with Luke’s nurse this morning, she reminded me of something and helped bring that ‘silver lining’ out a bit more. She commented how sweet the uninterrupted time with Luke must be. And it got me thinking. If we were at home, he would certainly be in our presence, but there’s no way I would be able to feed him, hold him for three hours solid, then feed him again. Thank you, Nicole, for that precious observation. I really needed that today.
Both ALG and JP had soccer games today and with the beautiful weather, it was great to see them play. I’m hoping that I’ll be able to see Will play his flag football game on Friday.
Scott and I returned to the hospital for our evening goodnight kisses. That is, without a doubt, my favorite time of the day with Luke. We’ve been saying some specific prayers for him and that time together helps bring the peace in – which we so desperately need.
So, Granny has returned home and we’re pinch hitting this week with an array of helpers. We have the day shift covered, but if any of you can take the 7-10pm night shift while Scott and I head up to the hospital, we would be so appreciative.
To our army of prayer warriors and helpers – thank you for helping make the most difficult weeks of our life, so filled with love and selflessness. You – yes YOU – are an inspiration to us.
Luke, sweet dreams sweet pea…