AAAAAAAARRRRRRRRRRRGGGGGGGGGG! Ok, I’ll explain that in a minute.
This morning, we enjoyed two action-packed soccer games, courtesy of John Paul and Anna-Laura. ALG’s team cleaned house, winning by double digits, and John Paul’s just had fun. Both scored some goals so they were happy 🙂 The sunshine and beautiful day were a welcome sight for all of us.
Around noon, I started getting the itch. I hadn’t seen Luke all morning and I felt the anxiety rising. After a quick call to the NICU, I found out Luke scored one of our favorite nurses, Beth, and that a sweet friend of ours, Janet (also a NICU nurse), had been helping out. When I learned that she had been holding Luke for a few hours because he’d been fussy, I teared up. Really, I did. There was great peace in knowing that he was in hands that I completely and totally trusted. Thank you, Dear Lord, thank you.
Scott and I spent the better part of the afternoon and evening with Luke. He was certainly fussier than normal (he was ravenous and it showed) and the peak hit around 7. He was freaking out. Translation? I was freaking out. Normally, when my kids cry like that, I change their diaper, bundle them up and nurse them. I hate, hate, hate, hate not being able to feed and nurse him. It’s agony for both of us. I was darn well near tears until 9, when we finally got him settled down.
Now, back to the first line of the post.
Phone rings at 10:35 and it’s the neonatologist. Crap.
Seems as if Luke has pulled out his PICC line (not good). It’s the line that gives him his nutrients, his meds and everything else. Pulling it out means we have to put in another one sometime tomorrow. Folks, this ain’t no ordinary IV. It’s his lifeline because he’s not eating. And, it took SIX tries to get it in the first time. And, he was heavily sedated when they did all the poking. Please offer up your prayers for tomorrow. It will be a hard day on all of us as we find another place to insert the line.
Silver lining? We were blessed with two really extra fantastic neos tonight and tomorrow – Dr. Pont and Dr. Michael. God bless those two.
So, we’ll head up there in the morning and spend that time in consultation with the docs as we figure out the next step.
I’m tired – aren’t you? Tomorrow is another day. Here’s hoping that today’s “step back” will be tomorrow’s “step forward.”