And 3 weeks flew by, just like that. Well, ok, not just like that…but 3 weeks??? Wow.
I had two bad lapses of judgement today. You’d think I’d know better.
Bad choice #1: Tried on the “skinny jeans”. Bad, bad idea. Scott warned me – like he’s done with every other child – not to do it. I turned the deaf ear and did it anyway. Not recommended.
Bad choice #2: I thought about a discharge date. Never a good idea in the NICU. I should know better by now that looking more than one day ahead is dangerous.
Both choices ended in tears.
Luke, however, continues to stay steady and run the course. He had another uneventful day and particularly enjoyed his “lab holiday” which meant no heel sticks for a whole 24 hours! He’s been maintaining his blood pressures, too. So, tomorrow we’ll draw blood before the weekend and then the doctor says he gets a “lab vacation.” Totally different than a holiday. He gets a whole 48 hours of no blood draws. His heels must be doing a happy dance. He continues to be the rockstar at Dell.
I’ll post tomorrow evening and then take a “blog holiday” until Sunday evening. I will still document the day, no worries, but I’ll give everyone a break 🙂
Monday, though, I’ll come calling with some major prayer requests. We will likely start feeds on Monday and I’m trying to keep my anxiousness at bay. So far? Not doing well. Feed day will be the test of the surgery. Will the NEC come back? Will Luke’s bowel need more surgery? Will he pass with flying colors? I hate not being in control, so dang hard for a Type Aer like myself. Luke and God have to do this one on their own while we sit on the sidelines and pray our hearts out.
Today was hard. Not sure why. I had a great lunch with a sweet friend. Daniele, thank you 🙂 When Scott picked me up, he said, “So, how is Luke’s mom today?” I responded with tears. Scott just patted my leg. Man, I love that husband of mine. Hi roller coaster, I’m back for another round. Nothing hugely out of the ordinary happened today, and I suppose that’s part of the problem. Sometimes I get a wild hair and I want to stash that cute boy of mine in my purse and smuggle him out of the NICU. Just before I walked out of his room, I gingerly laid my head on his breathing belly, let a few tears slide out and whispered just loud enough for Luke to stir, “Sweetheart, I love you with all my heart…Daddy and I will see you tonight for kisses.”
Discharge day just really can’t come soon enough.
Now, for a pick-me-up. When we were decorating Luke’s door last week, I came across a family tree in the scrapbooking stuff and I got inspired. So, we made our own “tree” and asked all those who have cared for Luke – respiratory therapists, neonatologists, residents, ultrasound techs, nurses, cardiologists, surgeons, etc. – to fill out a leaf and place it on Luke’s tree. It’s the talk of the hallway. I love seeing how each person carefully places where to stick his/her leaf and then they proudly admire the tree. What a testament of love on his door. He is undoubtedly in some pretty amazing hands…