How did October get here so quickly?
Yes, we’re still in the NICU. And, no, we don’t know when we’re going home. I think that’s our most asked question and my reply is always the same, “You’re asking the wrong person :-)”
Luke is making slow, but steady, progress in the right direction. Here’s the skinny…
Surgeon report: Dr. Meyer bellowed out a “wow” when he saw the output in Master Luke’s ostomy bag. Seems as if the plumbing is starting to work and that’s a very promising sign. His color continues to improve and overall, he just looks like a happier, much more comfortable kid.
Cardio report: We did another echo of his heart today and Randy, the sonographer, was kind enough to show us the VSD. Even my virgin eyes could see the hole that Dr. Shaffer referred to yesterday. It’s measuring about 2-3cm. For now, we’ll just keep an eye on it. As for the PDA, we’re considering some medicinal options that would close that hole. It’s possible we would look at those more seriously next week.
Neo report: We are slowly starting to wean Luke from the pain meds and he’s tolerated the wean quite well today. I’m so proud. The only icky part of today was when the nurse went to flush one of his IVs (the one inserted by surgery) and we realized that he has a pretty nasty wound on his foot. We called for a wound care consult and we’ve got some medicine on it, along with good ‘ol fashioned oxygen. It’s a good thing that the IV wouldn’t flush (and that I was at Mass praying for him!) otherwise we would’ve found out when the wound was much worse.
Ok, now for some good news – our version of small victories.
1. Luke got a bath! It was a spit one, but he looks – and smells – much betta.
2. We’re hopeful that he will be extubated in the next 24-36 hours – can I hear a WOO HOO?
3. We’re continuing to go down on his dopamine, which has been regulating his blood pressure. He’s starting to do it all on his own. That also means he loses another IV and his only one would be the PICC line.
4. He started to wake up a bit today and I got to see his big, beautiful blue eyes. Made me melt.
So I guess four small things add up to another good day for Luke. One day at a time.
I was fortunate enough to enjoy lunch with the other love of my life, Scott, away from the hospital. It was quite nice…and I only cried once. Not being able to hold Luke is just about more than this mom can handle. I just try to remind myself that there are moms who wait much longer… Soon, I’ll be giving him so many kisses he won’t know what to do with himself.
I’m grateful for the time I spent at Mass today. Until then, I had completely forgotten that today is the Feast Day of St. Therese of Lisieux, the “Little Flower”. For those that have been following the blog a while, you know how much I admire this amazing nun. When we were in France this spring, we visited her hometown. I’ve often said that it was her intercession on our behalf that has allowed us to make little steps towards surprising our doctors. Today was no exception.
On a personal note, I want to say this. Luke has enabled me to learn so much about my friends – those that I’ve known all my life, those that are new found, neighbors, fellow school parents, colleagues and everyone in between. So many of you have reached out to Scott and I and shared your similar stories. You are inspiration to the two of us.
Sometimes I feel like the radio DJ that just chats and chats and never knows if anyone is listening. Even if just one of you is touched by Luke’s story, then he will have fulfilled his purpose. We’re called to share, called to challenge, called to witness. I thank God every morning for his life, and for the lives of my other children. They are fantastic teachers.
Here’s to another day of progress. May they continue…