Tuesday was a big day. Scott got the girls off to school and headed downtown. I, of course, headed to the NICU for Luke’s 8am feeding. When I got back, I had just missed my OB, so I jumped in the shower (which felt awesome by the way) and Scott and I went to the NICU for the 11am feeding. I turned over feeding duties to him.
I have to say this…Scott is an amazing dad. No really, he is the very best. Not only does he change diapers without being asked, or scrub a toilet or make a mean pasta dinner – he is always 100% there for his children, in body and spirit. Our children know they are loved and seeing him with Luke reminded me of just how much he means it. I have no idea how I married the greatest man on earth, but it happened.
Dr. C was doing rounds and we got our daily Luke report. Overall, another fairly good day. Again, his feedings were increased (we’re now at 20cc), his weight loss looks like it’s bottomed out and he thinks tomorrow’s weigh-in will show that Luke has regained his birth weight, his creatine levels are continuing to go down, and his electrolytes continue to be normal. He’s a little concerned with Luke’s growing jaundice. His level was 9 and if he gets to 12, looks like somebody’s getting a suntan under the billy light. We shall see.
After we returned to my room, just as we sat down to eat, my OB, Dr. Weihs, stopped by. I have this to tell you about her…when she talks to me, I feel like I am her only patient. I have never met an OB that so totally empathizes with what we’re going through and what we have to face. I looked at her and said, “Dr. Weihs I wish there was a way to say thank you enough to you for everything you did for us during delivery.” Her reply? “Kathryn, you already have.” She sees the three of us as a team and I have no doubt that her 30 years as an OB served us well on Friday. There is no substitute for experience and wisdom. Felicia, if you’re reading this, a million thank yous for suggesting we change hospitals and OBs for this delivery. It was the single best pregnancy decision we made.
So I was “officially” discharged today, but Seton has this stellar program called “nesting.” They allow you to stay at the hospital, in your very own room, free of charge. Insurance – they know nothing about this little freebie. They don’t feed us or medicate us, but the room is ours. The only catch is that if they need the room for a post-partem momma, we get the boot. Right now, it seems to be working pretty well. I’m just a short walk to the elevators that take me to see Luke and it’s a fantastic place to crash, pump (and blog!) between feedings. Yes, there’s a downside…but I can’t go there right now. Maybe tomorrow.
My physical self is doing good. My incision is healing nicely, you know, just in time for that Hawaii vacation I need to book. It’s a completely different recovery than from a normal delivery. I’ll spare you the details thankyouverymuch. But know that physically, I’m doing a-okay.
It’s this emotional roller coaster of the NICU that’s taking its toll. I’ll tackle that in tomorrow’s post. You know, because I’m already crying 🙂
On a whim, I decided to attend a “scrapbooking night” for the NICU moms after Luke’s early evening feeding. Talk about therapeutic. Evidently, Bay 2 is where it’s at, because there were 3 of us there. Liam’s mom, Iona’s mom and me. We all shared a bit of our NICU experience and story, began making a scrapbook and ate some pizza. I think it was tonight that I realized I’ve joined a special group of moms. Kinda like when I miscarried. Totally didn’t want that membership card, but the company has been uplifting and inspiring. These NICU moms are a special bunch. We all agreed that no matter your story, no matter the length of your stay, it’s hard on all of us. It’s hard on our babies, our families and our friends who want to help.