Finally, we got some rest last night. Luke spent most of the evening enjoying the high of his anesthesia and rested comfortably. I checked on him about 2:30am (up pumping 🙂 and he looked peaceful. I think that helped me sleep.
During 11am rounds, we got the down and dirty as to what’s going on. And, fortunately our neo knows I’ll always have a question (or two or three) at the end. I’m his other resident… Rounds are one of the things I really admire about Dell Children’s. They see Scott and I as part of the team and include us on as much as possible. They never tire of our questions and they’re always eager to ask what more they can do. Well done DCMC.
For right now, things are stable. We finally found the right dosage of pain meds and the plan is to give him another blood transfusion this evening. Just an FYI: infants don’t really make blood, like adults, the first few months of life. Thus, those transfusions are importante. His right lung, the upper lobe, had a bit of fluid and secretions and the respiratory therapist will be working with Luke to break those up and get full air flow in that lung throughout the day. At his 2pm check-in, we learned that the x-rays showed an all-clear lung. And, as the RT said, “I was surprised! That’s great news.” Seems as if Master Luke has the force.
We were finally able to get his echocardiogram done this afternoon, as well. I probably forgot to mention that in all the hullaballo on Sunday. The neo detected a slight murmur and had ordered an echo for Monday. We all know how that played out yesterday, so the order got moved to today. The report came in about 3 that he has VSD and PDA. Layman’s terms? VSD means that there’s a slight hole between the two bottom chambers of his heart, the ventricular. And, another hole that’s slightly open (PDA) just below his heart between the two valves. This one typically closes 3 or so days after birth. We won’t really know more until we visit with the pediatric cardiologist tomorrow morning. Neither is life-threatening to Luke and while a bit concerning, our primary focus is his bowel and the infection. Both the VSD and the PDA can be corrected via a catheter and right now, we don’t believe they will require open heart surgery.
One thing at a time buddy. One thing at a time.
We enjoyed lunch with my Dad and a friend today – actually venturing out of the hospital. Good for all of us, and especially good for me.
Trust me, I should get a sign-up sheet for everyone that’s asked if I’m taking care of myself. For the most part, yes. I know that when the time is right, we’ll get kicked out of our rooming in spot in the NICU and I’ll be back at home. It’s not really realistic to think that I’ll be this close to Luke during his entire stay in the NICU. But during this acute, critical phase it has given me peace of mind to be so close. You know, a momma bear has to protect her cubs.
Around 4:30, we attended Mass here at the hospital. A welcome perk to being in a Catholic hospital. Luke received some wonderful prayers and blessings from our priest at St. Vincent de Paul, as well. Scott ventured home for a bit to eat dinner with the kids and partake in the craziness we call “wash ’em, dry ’em and put ’em up”, i.e. bath and bedtime. I’m sure they enjoyed some Daddy love. Granny Carla and Uncle Cory went back home and Granny will be back on Sunday for the week.
While Scott was gone, I had the chance to do something quite special with Luke tonight. Hold him! Well, not exactly what you’re thinking. I held him up while they changed his bedding. But to touch his little body and tell him how much I loved him while doing it was awesome. I’m learning to enjoy the little joys in the NICU. Scott will be jealous.
One last thing before signing off for this evening…a few days ago I talked about our stay here being a blip on the radar. Scratch that. This journey, this experience, has altered our perspective permanently. No blips. Big life change.
Glad we got that straight.